Registration Opening Autumn 2021

Call for Memorial Art

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Call for mini memorial video: Blood loss – remember the past, changing the future

A Memorial Audio-Visual Project honouring those lost by the bleeding community – we ask for your participation.

Memorial art, the way we remember those we have lost has many forms. You are likely aware of The NAMES Project AIDS Memorial Quilt and the all too numerous war memorials such as the Vietnam Veterans Memorial. More recently however, it’s evolved beyond monuments of stone and the art itself. The USC Shoah Foundation – the Institute for Visual History and Education is dedicated to making audio-visual interviews and collecting written essays from survivors and witnesses of the Holocaust and other genocides. The 9/11 Memorial Museum tells the story of 9/11 through media, narratives, and a collection of authentic artifacts. Sharing with visitors these personal stories of loss, recovery, and hope.

These endeavours are not just living history but a compelling voice for education and action and are important to communities healing from trauma. They speak to the people of today and the future.
The bleeding disorders community is no stranger to the loss of loved ones. We think it is important to help bring forward the lessons and knowledge from the losses our community has faced – to activate them and to enliven those we have lost. Numbers are easy to dismiss; names, faces, and their stories are not. We want to give those people an honoured place and resonance within the here and now and bring healing to the community. And hopefully, we can help prepare the next generation to guard against these kinds of preventable losses from happening again. Within these memorials are road maps to empowerment and activism.

At the WFH 2022 World Congress in Montreal, we would like to feature such stories, mini memorials, from our community. It is our belief that knowing something about the people who have left us and those who have survived, will strengthen our bonds with each other and help to ensure all people with bleeding disorders will enjoy a more certain future filled with promise, no matter where they live.

On behalf of the WFH 2022 World Congress Multidisciplinary Program Committee, we invite you to submit short videos of your stories of loss. The videos can be from persons with inherited bleeding disorders who have experienced the loss of community members, or caregivers, friends and family members of a person who has passed- share your story of a person who has been lost as a direct result of their inherited bleeding disorder. Or, if you have a bleeding disorder yourself, share your story of living with a bleeding disorder – and managing your condition.

Your mini memorial can be recorded anywhere you like, on any device you like. Below are some tips on recording and some questions/prompts to get you started. These videos will be displayed at the upcoming WFH World Congress. Videos accepted in all languages.

INSTRUCTIONS:

  • Introduce yourself, where you live, and what your connection is to the bleeding disorder community.
  • If you are remembering someone you have lost, introduce them, and what your connection was to them.
  • What you would like to share about your survival or the loss of the loved one you are memorializing. Please share something that will help people connect with that person.
  • Please keep the videos under 5 minutes.
  • Submit the video as an .mp4 file to [email protected] (use a file transfer if needed like WeTransfer or Dropbox). Deadline to submit: March 1, 2022.

QUESTIONS TO THINK ABOUT:

Less is more. Don’t try to tell us everything about your story or the person you are remembering. Tell us something specific. Maybe even stick to one aspect of the person you are remembering.

  • What is your favourite memory of them?
  • Is there a funny story you can share
  • Pictures or a short video you want to share?
  • Is there any art you have created in their memory that you can show us?
  • Is there a possession of theirs that you have that is meaningful? Can you show it to us?
  • Do they/you have a favourite spot where you like to remember them? Can you take us there?
  • Can you tell us their/your most meaningful aspect of their journey with their/your specific bleeding disorder?

These are only suggestions, this is your memorial, your story of your loved one or your own survival. Tell us what is important to you. Thank you.

Sincerely,  

Rick Waines, Vice-President, British Columbia, Canadian Hemophilia Society; Member, Multidisciplinary Program, WFH 2022
Robert Cooper, Creator, Unspeakable (TV mini series)

Example of a mini memorial video: